Sickle Cell, Why Are You Here?

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‘Me, Myself and Sickle Cell’ video blogs.

 

Out of hospital since my last post and I had to come to terms with the fact that I may be doing too much and have to take it easy. Sometimes sickle cell can really get in the way of life but I guess I have to accept that fact, listen to my body and keep it moving.

 

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Sickle Cell and Racism

 

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‘Me, Myself and Sickle Cell’ video blogs.

 

This sarcastic tweet by a nurse was one I couldn’t scroll past without replying. Racial stigma against sickle cell patients does exist!!

What are your thoughts?

I’m sure we (sickle cell patients) have many bad experiences we could share but I’d love to share some positive ones. If you have any you are willing to share, please leave details in the form below and I will share the stories in a future video.

 

 

Y O L O

In the past 9 months I’ve done a whole lot of travelling; 6 different countries to be exact. That’s probably no big deal for any other individual, but it may sound slightly extreme for someone who is living with sickle cell. It has taken me years to be able to travel this much without risk and without fear; but believe me I have taken many L’s in the process. Continue reading “Y O L O”

A Future Cure For Sickle Cell?

Recently, an article has gone viral among the sickle cell community regarding a new pioneering treatment which has reversed a teenagers sickle cell disease by changing his DNA. I cannot even count how many posts I have been tagged in and messages I have been sent of this article. If you haven’t seen it, I don’t know where you have been! Continue reading “A Future Cure For Sickle Cell?”

My Friend Jen

Writing a book related to sickle cell is something that I have thought about doing for a very long time. I have always wanted to do something to create more awareness of the condition and to help others living with it, but I used to think ‘how can I help anyone else if I’m not able to help myself?’  Continue reading “My Friend Jen”

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